Meanwhile I have an appointment with a general surgeon to check out this possible hernia. I'm also seeing a physical therapist who is "releasing" (putting pressure on) my left psoas muscle because she believes my pain is musculoskeletal and that this will help. This muscle seems to be nowhere near my pain and although it's super painful for her to release it (so there's obviously a problem there), it is not helping my abdominal issue. I feel like I just keep chasing an endless dream of a solution. I really, really want it to go away and no one can seem to make that happen yet. I hate living this way, not only because it's painful but because of the fear of the unknown. I just want answers. Unfortunately, I feel like this has become the motif of this blog.
When I went to Dr. Link he referred me to his new oncologist, Dr. Ein-Gal. He said it may help to have "a new set of eyes" on me. She seems to think I may have a hernia. I believe that even if I do, and I have been seen for this before (2 years ago as referred by this office) that it's a umbilical hernia and is unrelated to my side abdomen pain. On a side note, she also said she would like me to be a part of a genetic study and in order to do so I have to register with the gene bank, so to speak. I will need to meet with a genetic specialist to be put into their system. She referred me to Dr. Bremner (Temecula office) for a referral to a specialist closer to me. As much as I appreciate her thoughtfulness, the closest genetic specialist to Dr. Bremner is a doctor at UCSD. I called back to let them know I think Orange may be closer, and haven't gotten that appointment scheduled yet but should soon.
Meanwhile I have an appointment with a general surgeon to check out this possible hernia. I'm also seeing a physical therapist who is "releasing" (putting pressure on) my left psoas muscle because she believes my pain is musculoskeletal and that this will help. This muscle seems to be nowhere near my pain and although it's super painful for her to release it (so there's obviously a problem there), it is not helping my abdominal issue. I feel like I just keep chasing an endless dream of a solution. I really, really want it to go away and no one can seem to make that happen yet. I hate living this way, not only because it's painful but because of the fear of the unknown. I just want answers. Unfortunately, I feel like this has become the motif of this blog.
0 Comments
I went to the ER last night because I'm at my wit's end with the abdomen pain I've been feeling. I am in what feels like a constant state of torture. I've tried everything: changing my diet, going to the radiation oncologist, oncologist, general practitioner, gastroenterology specialist, chiropractor, masseuse, etc. and have yet to find relief or explanation. The ER did a chest , abdomen, and pelvis CT and found nothing. I left with nothing but a prescription for Norco and a loss of sleep. I'm still so uncomfortable. Dr. Washington thinks it's nerve damage from surgery and that it won't ever go away. I start physical therapy tomorrow. I have my six month followup with Dr. Link on Monday. I will post more after I see him and see where he guides me to next.
|
Crystal Hofmann
Wife, mom, sister, aunt, daughter, friend, teacher, coach... survivor. Archives
November 2019
Categories |